HEALTH & WELLNESS
Allergic Living Sneak Peek
Celebrating Religious Holidays
NEWS & UPDATES
CHAT WITH NFCA:
Thank You for Being Part of the Conversation
NFCA President and CEO
Research has always been central to the National Foundation for Celiac Awareness’ (NFCA) mission. When I first founded the organization in 2003, I knew that we had to work to raise awareness of celiac disease so people could get diagnosed before NFCA could play a larger role in research. Now that awareness of celiac disease is higher than ever, we’re able to put even more attention towards accelerating research. Over the past 12 years, NFCA has connected with the community to understand your unmet needs while simultaneously collaborating with researchers and physicians to analyze data to work towards solutions for these issues. Our ultimate goal is to help you live your life to the fullest, despite living with this serious genetic autoimmune disease.
Within the last year and a half, we have increased our conversations with you about research and the changes that are happening in the field of celiac disease. Potential pharmaceutical treatments are on the horizon. Scientists are waist-deep in the search for answers on the causes of celiac disease and why more of us are affected by this serious genetic autoimmune disease now than just 50 years ago.
Some of these concepts are new for those of us living with celiac disease. Over the years, we’ve been told that our disease is a figment of our imaginations. That we’re picky eaters, fad dieters or simply fakers. And that’s only after we have fought an average of 6-10 years to get the answer to our ailments. It’s been a long, frustrating road for many of us.
Despite this, we are on the brink of change. Research is bringing us closer to solutions to the day to day struggles living with an autoimmune disease can bring.
Big things have happened in celiac disease research over the past few weeks alone. The U.S. Food and Drug Administration (FDA) hosted the GREAT3 Workshop this week, which focused on identifying and discussing solutions to address the unmet medical needs of people with celiac disease. (More on this landmark event to come!) Drugs are advancing through the clinical trial process and we continue to have new contenders enter the market on a regular basis. In just two weeks, NFCA will host a 2015 Research Summit aimed at using community feedback to shape a formalized knowledge-sharing process between those living with celiac disease and the researchers working to help us live better, longer.
I must emphasize that you, our community members, have helped to make these research advances possible. It is your feedback, comments and questions that drive our mission and our work. So, for this newsletter note, I would just like to say thank you. Since my own diagnosis of celiac disease, my life’s mission has been to help those suffering with celiac disease find an answer. I am proud to be a part of this research movement that is pushing us closer to being able to eat without fear and to live our lives to the fullest, despite celiac disease.
I strongly encourage you to stay up-to-date on the research that is happening in the field. Sign up for NFCA’s Research Opt-In today to receive periodic communication on the major news in the field of celiac disease and how you can be a part of it.
And, of course, please keep talking to NFCA on social media. You are at the core of what we do and your opinions and experiences are critical to our work.
To our GREAT health,
AVGOLEMONO – GREEK EGG AND LEMON SOUP
The original recipe came from one of those tiny church cookbooks (only Greek recipes) from a friend, Sheila, who married into a Greek-American family. She’s changed it to their liking and I did as well, based on what I had and what I liked. Some people (like me) prefer it extremely lemony – my husband does not.
FASTEST FUDGE CAKE WITH CHOCOLATE GANACHE AND NUT TOFFEE
This is easier, quicker and has less fat than my regular chocolate cake, which contains a lot of melted chocolate, butter and sour cream. I fancied making this with almond meal and then also made it with hazelnut meal. Very brownie-ish, very tender and easily breaks when warm.
About Chef Oonagh Williams
Watch the clip with an Irish Cream version of this fudge cake on WMUR’s Cook’s Corner. Like her at Gluten-Free Cooking with Oonagh on Facebook. Look for interviews with Chef Oonagh and radio appearances posted on Gluten Free Cooking with Oonagh.
Chef Oonagh also does Corporate Lunch ‘n’ Learns and speaks at celiac disease conferences. Her Delicious Gluten Free Cooking eBook makes a great Easter gift. Recipes from kid-friendly pancakes and Belgian waffles to adult indulgent English trifle and Tiramisu.
Study Calls for Growth Screening to Detect Celiac Disease
Children’s growth rates could be the key to catching celiac disease early, according to a major study out of Finland.
“Prior to diagnosis, growth faltered in most children with celiac,” the researchers stated in the study. “These children could have been detected several years earlier by a well-established growth-monitoring program.”
Photo credit: AllergicLiving.com & Thinkstock
Welcome to our newest eNewsletter segment! We’re highlighting an NFCA resource every month to make sure you get the tools you need most.
It’s an exciting time in celiac disease research! You can keep up-to-date on the biggest news in research, plus ways to get involved, simply by signing up for the NFCA Research Opt-In.
When it comes to living with celiac disease or gluten sensitivity, many in our community say that managing the increased cost of gluten-free alternatives is one of the biggest challenges they face. NFCA is here to help! Throughout April, we’ll share tips for finding the balance of maintaining a healthy gluten-free diet without breaking the (piggy) bank.
We’re looking to our community members to share their money-saving tips and recipes, too! Each week, we’ll post a question or call for recipe photos on Facebook. We’ll randomly select a participant to win a gluten-free prize pack from our sponsor, Pamela’s Products.
We know how frustrating and nerve-wracking it can be to identify the gluten-free status of a product found on the grocery store shelves. That’s why NFCA endorses the Gluten-Free Certification Program (GFCP), run by our partners at The Allergen Control Group. When you see our logo on a gluten-free product, you can rest assured that the product and manufacturer abide by the strictest procedures and protocols, designed to keep people with celiac disease safe from gluten exposure.
The GFCP is different because it takes more to earn its seal of approval than end-product testing alone. The program examines the entire production process of the facility – from ingredient sourcing to employee training, cleaning practices, cross-contact controls, operational management and, finally, an effective end-to-end testing plan.
Two major religious holidays are right around the corner: Passover and Easter. To help make your celebrations easier, we’ve compiled this list of products and recipes appropriate for Passover and Easter. Check them out below and feel free to share your favorite holiday recipe with us on Facebook!
Get more timely recipes in NFCA’s Gluten-Free Seasonal Recipe Box! For those of you celebrating Easter, visit About.com for their Gluten-Free Easter Candy List. Be sure to double check the labels before purchasing and eating!
*While this recipe is gluten-free, not all recipes on this website are gluten-free. As with all recipes, be sure to check all ingredients to ensure they are gluten-free before making.
Free Webinar: What Wikipedia Can’t Tell You about Celiac Disease Prevention – Hear It from the Experts!