10/01/2017
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Note from Alice
You’re Invited to Our Bold Beyond Research Symposium
HEALTH/WELLNESS
FOOD/LIFESTYLE
Celiac Straight Talk
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NEWS & UPDATES
Note from Alice: You’re Invited to Our Bold Beyond Symposium!
I’d like to take this chance to personally invite you to our first ever Bold Beyond Research Symposium. This exciting event will be held on November 9th at Drexel University from 5-6:30 pm. No worries if you aren’t able to make it to Philadelphia in person, we will be webcasting the symposium live across the globe for everyone interested in learning more about the latest in celiac disease research.
I’m looking ahead to this event with great excitement as it will bring together noted researchers, clinicians and community members to explore the current state and future directions of celiac disease research—something we’re passionate about advancing at Beyond Celiac. The event features live conversation with the following panelists:
- Ciaran P. Kelly, MD, Director, Celiac Center and Director, Gastroenterology Fellowship Training, Beth Israel Deaconess Medical Center; Professor of Medicine, Harvard Medical School
- Anthony J. DiMarino, Jr., MD, Chief, Division of Gastroenterology & Hepatology, Thomas Jefferson University Hospital
- Ritu Verma, MD, Section Chief, Gastroenterology, The Children’s Hospital of Philadelphia; Associate Professor of Clinical Pediatrics, Perelman School of Medicine at the University of Pennsylvania
- Daniel Leffler, MD, MS, Medical Director, Clinical Science, Gastroenterology TAU, Takeda Pharmaceuticals, USA Inc.; Director of Research, The Celiac Center at BIDMC, Beth Israel Deaconess Medical Center
For more information about attending the Bold Beyond Research Symposium either in the live audience or via webcast, visit www.BeyondCeliac.org/BoldBeyondSymposium . To sign up to hold a Webcast Viewing Party, you can contact our Executive Director of Development, Bob Gray, at 215-325-1306.
To living life Beyond Celiac,
Alice Bast
Beyond Celiac CEO
Gluten-Free Cooking with Oonagh
Gluten-Free
Sicilian Sausage Soup
A hearty and warming gluten-free soup, perfect for pre-trick or treat nourishment.
G
luten-Free
G
ingerbread & Pumpkin Cake
This gluten-free cake is made up of pumpkin, spice and everything nice!
About Chef Oonagh Williams
British born Chef Oonagh Williams holds a culinary arts degree and spends her time cooking, writing, speaking, and educating the public on gluten-free and allergy-free diets. She herself has celiac disease along with other food allergies. When not writing or speaking nationally on food, she teaches cooking classes, hosts dinner parties, and offers one-on-one help. Locally, she teaches healthier food cooking classes including vegetarian cooking for everyone, as most real food is naturally gluten-free and free of many other allergens. Chef Oonagh had the honor of being a speaker at the Boston Celiac Symposium, alongside top doctors from Beth Israel, Mass General, and Harvard Medical School.
Buy herDelicious Gluten-Free Cooking e-book, over 200 pages, full color photos, only $20;
like her Facebook page, Gluten-Free Cooking with Oonagh, where she posts recipes, links to her appearances, and gluten-free products she’s discovered; and connect with her on Skype for help in following a food allergy diet.
Study of New Treatment for Celiac Disease Using Nanoparticles Begins
A potential treatment for celiac disease developed by Cour Pharmaceuticals has been approved for clinical trials beginning at four sites in the United States. The specialty pharmaceutical company, which focuses on autoimmune, allergic and inflammatory diseases, using its patented nanoparticles called TIMP-GLIA received approval for Phase 1 trials from the U.S. Food and Drug Administration (FDA) in August…
Diaper Duty
By Amy Ratner, Medical and Science News Analyst
About half the babies needed for a study to determine how celiac disease develops have now been enrolled.
Researchers conducting the Celiac Disease Genomic Environmental Microbiome and Metabolic Study (CDGEMM) report that they have signed up 248 of the 500 babies they hope to follow. The study is also investigating ways to prevent celiac disease from developing…
Are You Always Gluten Sensitive for Life?
By Amy Ratner, Medical and Science News Analyst
Those who have non-celiac gluten sensitivity may not always have to follow the gluten-free diet for life, a review of five years of research suggests.
While non-celiac gluten sensitivity has not been studied as extensively as celiac disease, it was included in an evidence-based update on the pathophysiology, diagnosis, treatment and implications of the conditions done by the Center for Celiac Research and Treatment at Mass General Hospital for Children…
Correct Diagnosis Critical for Gluten-Free Patients
By Amy Ratner, Medical and Science News Analyst
It’s important for physicians to distinguish between celiac disease and non-celiac gluten sensitivity because of the impact correct diagnosis has on long-term treatment, researchers concluded after reviewing more than five years of studies on both conditions.
In an article published in the Journal of the American Medical Association (JAMA) experts from the Center for Celiac Research and Treatment at Mass General Hospital for Children also called for close follow-up for celiac disease patients to monitor how well they are following the diet, whether they have nutritional deficiencies and whether they are developing comorbidities.
Allergic Living: Why Gluten-Free Supplements Can’t Treat Celiac Disease
By Rosie Schwartz
“Don’t avoid gluten, digest it with Glutagest!” Eat pizza and s’mores with no worries, suggests the company’s Facebook page. Meantime its website says: “Glutagest quick dissolve probiotic capsules target and break down the gluten from food by actively splitting gluten proteins into smaller good proteins that are easily absorbed by your body.”
If you have celiac disease or non-celiac gluten intolerance, it would be a dream come true if, instead of following a strict gluten-free diet, you could indulge in gluten-laden pizza simply by popping some supplements. However, the supplement claims don’t pass the reality check of celiac and gluten intolerance experts…
Photo credit: Getty/Allergic Living
Listen to Episode 3 of Celiac Straight Talk
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Patients Managing the Disease on their Own
Research shows celiac disease patients are on their own when it comes to care. Most people who get diagnosed with celiac disease don’t go back to their doctor for follow up care, shows a study done by Beyond Celiac and researchers from Columbia and Vanderbilt universities. Patients manage the diet and deal with whatever symptoms they suffer on their own. But what are the consequences?
What’s Hot
- The Step Beyond KC5K, is happening October 14th in Kansas City. Sign up for this run/walk by October 12.
- The Bold Beyond Symposium, the premier event for celiac research! Join us in person or via webcast.
- The Celiac Project, Episode 86, Cam and Mike interview Alice about the launch of Go Beyond Celiac.
- 12-Year-Old with Celiac Disease to Compete on Top Chef Junior , where she’ll showcase her ‘amazing’ gluten-free dishes!
- Antitode Interviews Alice, about Beyond Celiac and what’s next for celiac disease research.
