05/01/2018

May 22, 2018

05/01/2018


COLUMNS

Note from Alice

Cooking with Oonagh

HEALTH/WELLNESS

A new study examines the connection between Epstein-Barr and seven autoimmune diseases
A look at the impact of diagnosis in children and older adults
When Grandparents Don’t Get Gluten-Free

CELIAC AWARENESS MONTH!

How to Be a CeliACTIVIST

NEWS & UPDATES

What’s Hot

Note from Alice: #ItsTimetoCeliACT!

Our month has arrived! May is Celiac Awareness Month, and while we at Beyond Celiac don’t limit our awareness efforts to just one month, we get excited each spring for a time when more eyes are opened to the truths about this serious autoimmune disease. This year, we’ll be celebrating celiac awareness with our #ItsTimetoCeliACT campaign. Throughout May, we will be focusing on the future of celiac disease and what we as community members can do to influence that future.

Help me to help you! In all of us lies a celiactivist! Your daily life offers countless opportunities to use your voice and raise awareness about the seriousness of the disease. Educate and enlist the support of your family and friends. #ItsTimetoCeliACT! Here are a few ways you can take action to help spread awareness and advance celiac disease research along with Beyond Celiac this month:

SHARE: Did you know that most people need to see a message seven times to remember it? As we encourage every year, take time this Celiac Awareness Month to reflect on how celiac disease may be an invisible illness in your life and share our videos, infographics, or website with anyone who may benefit from knowing even just a little more about the hidden truths of living with celiac disease. For example, I was in Brooklyn this past weekend and 4 small restaurants who advertised “gluten-free” told me that I could not eat their gluten-free food because I have celiac disease. My own daughter was shocked. You see, the more you share celiac disease info on your feed, the more you’ll help raise awareness even with your own friends and family members. Social media is an amazing way to educate. The average person has 338 friends on Facebook; sharing links and info with your friends can help spread the word quickly! And remember to use the hashtag: #ItsTimetoCeliACT!

BUY: Sport your CeliACTIVISM and support Beyond Celiac by purchasing our new merchandise. The items you wear and carry are all opportunities to draw attention to what you believe in and can start a conversation. Be a celiACTIVST and let the world know! For cool, fun celiac-related items visit the Beyond Celiac online store. Funds raised go toward celiac disease research projects – so by buying, you’re not only spreading awareness and getting something cute, you’re helping to pay for research. A win, win, win!

RAISE: Each year, individual people like you raise a total of $1.45 billion in support of something they believe in. Are you sick of being sick? Do you want better? Do you want a cure? Research takes money and every dollar counts. Do something fun this Celiac Awareness Month to raise money for research. There are countless of ways to do so: Start an Individual Giving Page, you can even do so in honor of a friend or family member with celiac disease, create a Facebook Fundraiser, direct your birthday gifts to Beyond Celiac, walk/run a 5K, throw a party. There a million easy ways to raise money for celiac disease that can fit into your life.

JOIN: 500,000: That’s the number of people diagnosed with celiac disease who have a story that can provide the clues that could lead to a treatment and cure. This year, we launched a unique online community, Go Beyond Celiac, that collects and compiles these stories from people with celiac disease and their caregivers about their journeys before, during and after diagnosis. Together, we can ensure that researchers understand our community’s concerns so they find solutions that meet our needs, and ultimately, find a cure. Sign up today at Go.BeyondCeliac.org. Every story shared brings us one step closer to living life beyond celiac and to a cure.

I hope that you are inspired and encouraged to take action. Each of us can take small steps towards change for celiac disease. Through these steps we can come together to create something big. We CAN make a difference, we CAN advance celiac disease research and one day we CAN find a cure to this serious disease. Now is our time to celiACT!

To living life Beyond Celiac,

Alice Bast
Beyond Celiac CEO


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Gluten-Free Cooking with Oonagh

Gluten-Free Pork with Orange Sauce

A dynamic gluten-free meal that can be shaken up by using chicken, salmon or even scallops in place of pork! GET THE RECIPE .

Gluten-Free Malva Pudding Cake

A yummy gluten-free version of a traditional South African dessert! GET THE RECIPE .

About Chef Oonagh Williams


Chef Oonagh Williams

British born Chef Oonagh Williams holds a culinary arts degree and spends her time cooking, writing, speaking, and educating the public on gluten-free and allergy-free diets. She herself has celiac disease along with other food allergies. When not writing or speaking nationally on food, she teaches cooking classes, hosts dinner parties, and offers one-on-one help. Locally, she teaches healthier food cooking classes including vegetarian cooking for everyone, as most real food is naturally gluten-free and free of many other allergens. Chef Oonagh had the honor of being a speaker at the Boston Celiac Symposium, alongside top doctors from Beth Israel, Mass General, and Harvard Medical School.


Buy herDelicious Gluten-Free Cooking e-book, over 200 pages, full color photos, only $20;

like her Facebook page, Gluten-Free Cooking with Oonagh, where she posts recipes, links to her appearances, and gluten-free products she’s discovered; and connect with her on Skype for help in following a food allergy diet.

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Virus That Causes “Mono” Might Be Linked to Risk of Celiac Disease

The virus that causes mononucleosis might also increase the risk for celiac disease and six other autoimmune conditions, a new study suggests. Epstein-Barr is a common virus that causes “mono,” a condition marked by extreme fatigue, sore throat, body aches and swollen lymph nodes. It most often affects teenagers and young adults….


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Celiac Disease Over the Span of Life

From childhood to late life, diagnosis of celiac disease is critical and should not be ignored. That’s the message for patients and healthcare providers from two recent studies….


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Allergic Living: When Grandparents Don’t Get Gluten-Free: 4 Steps to Educating About Celiac Disease

By Alice Bast

Fresh baked cookies right out of the oven. Sweet treats given in secret. Special dinners made from family recipes handed down for generations. Many grandparents cherish these special moments they can share with their grandchildren, but what happens when that grandchild is diagnosed with celiac disease? What happens when grandparents just don’t understand?


READ THE ARTICLE on
Allergic Living.

Photo credit: Allergic Living/Getty

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CELIAC AWARENESS MONTH 2018!

May is Celiac Awareness Month and we’re celebrating by showing how everyone and anyone can become a celiACTIVIST! Celiac disease is serious and affects an estimated 3 million Americans, but many people still don’t know about it. Now is a chance to educate and enlist the support of our family and friends in ways that fit your lifestyle.

#ItsTimetoCeliACT

SHARE : Share content and educational materials about celiac disease on your social media pages. Including our newest video:

RAISE : Start an Individual Giving Page for Beyond Celiac today!
BUY : Support celiac disease research by purchasing items from our online store.
JOIN : Join Go Beyond Celiac to help advance celiac disease research.

Learn more on our Celiac Awareness Month landing page.

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