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Note from Alice
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HEALTH & WELLNESS
Allergic Living Sneak Peek
Celiac disease & your sex life
Patient Advisory Council
Tax Deduction Guide
Getting Started Guide
Celiac Disease & Relationships
New video series!
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Win GREAT training!
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CHAT WITH NFCA:
Banding Together in Support of Invisible Illness
NFCA President and CEO
As you might already know, Joy Behar made some upsetting comments about celiac disease and the gluten-free diet on the January 20th episode of Morning Joe. We talked about it at length on NFCA’s Facebook page and on the Huffington Post. The effects of her comments rippled through the community and caused quite a stir. Many of us were disheartened by Joy’s comments – and rightfully so.
But then, something amazing happened.
The National Foundation for Celiac Awareness (NFCA) team posted a group selfie on Facebook with the hashtag #celiacisreal to address Joy’s comments that questioned the very existence of our autoimmune disease. Soon after, hundreds of you joined in the conversation, posting pictures of yourselves and your gluten-free loved ones, each accompanied with the #celiacisreal hashtag. When it was all said and done, we reached nearly 85,000 people on Facebook alone. That’s huge!
By banding together, we were able to get the true story about celiac disease out there. We put a face on an invisible illness and showed that our community is a group that supports each other through the challenges that come with living with a condition other people can’t always see.
I am proud to be a part of this community and I am honored to serve as an advocate on your behalf. As our community comes together in support of each other, let’s also remember to include the researchers dedicated to studying celiac disease and non-celiac gluten sensitivity (‘gluten sensitivity’). As our friend Peter Bronski of No Gluten, No Problem pointed out in his blog post, it’s easy to get distracted by the negatives. So, as we work to set the record straight on the severity of celiac disease, let’s not forget the amazing researchers who do recognize the seriousness of the autoimmune disease and work tirelessly to help us get well and stay well. These researchers might not get to sit on the set of Morning Joe, but they are truly the celebrities within the gluten-free world. A big thank you to our unsung heroes!
Thank you all for rallying behind me, the NFCA team and our research partners as we work to help you live your life to the fullest and eat without fear.
To our GREAT health,
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Valentine's Day Dishes
CHOCOLATE BREAD PUDDING
Valentine’s Day falls on a Saturday this year, so you can prepare this the night before or you can try the Eggs Benedict version below. Then, just bake it in the morning to start the day off with your Valentines!
BAKED GLUTEN-FREE EGGS BENEDICT WITH EASIER HOLLANDAISE SAUCE OR DAIRY-FREE HOLLANDAISE
I found the original wheat recipe for this on the Jones Dairy Farm website. I've used only their sausage roll for years for stuffing and homemade patties. My husband loves for me to buy the big bag of their ready-cooked sausage for breakfast in preference to bacon. I adapted their recipe to be gluten-free and made their Hollandaise Sauce using an easier method.
About Chef Oonagh Williams
Like Chef Oonagh at Gluten Free Cooking with Oonagh on Facebook, where she posts recipes, her appearances on NH ABC WMUR TV, Local and National radio, products she's tried, where she will be speaking next. Contact Chef Oonagh on Skype for consultations on food for the gluten-free and other food allergy diets. Her gluten-free cookbook, Delicious Gluten Free Cooking has over 200 pages with full color photos. Click the link for photos and a list of all recipes. E-mail at CookingwithOonagh@yahoo.com.
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Celiac Disease and Your Sex Life
By Lisa Fitterman
Phil Zimbardo wants to talk about sex. More precisely, he wants to talk about the utter misery of losing interest in it. As a life-long lover of women, he was at a loss when it happened to him, a Dr. Phil, a psychologist more used to seminars on mental health than dealing with his own, a prolific author and speaker – a guest, even, on the TV talk show hosted by that other Dr. Phil.
In his early 70s, Zimbardo was hit by a perfect storm of symptoms that included extreme fatigue, a bloated belly, constipation and the constant, embarrassing need to pass gas. Zimbardo knew it wasn’t just age-related, and his doctors were mystified. Maybe it was irritable bowel syndrome, they suggested, or excessive gas syndrome, which seemed little more than a catch-all term for a condition they couldn’t fix, no matter how many colonic treatments and anti-flatulence medications he was prescribed.
Here at NFCA, we have always worked to be as patient-centered as possible. To take it to the next level, we have launched our inaugural Patient Advisory Council. After carefully considering many community members through their applications, we have selected 13 individuals for this year’s Council. Representing the celiac disease community, these members reside across the United States, and range in age from 13 to 58. This dedicated group of volunteers will advise NFCA staff throughout 2015 as we work in the field of celiac disease and other gluten-related disorders.
Thank you to everyone who applied for our Patient Advisory Council! We appreciate your interest in being a part of NFCA. Your next opportunity to be a part of the Council will come at the end of this year. Stay tuned!
Welcome to our newest eNewsletter segment! We’re highlighting an NFCA resource every month to make sure you get the tools you need most.
Getting Started: A Guide to Celiac Disease and the Gluten-Free Diet is a favorite among NFCA staff. It’s the go-to guide for the basics of everything you need to know about managing a gluten-free lifestyle. This 42-page comprehensive guide has been downloaded by thousands looking to restore their health and reclaim their lives. Whether you’re newly diagnosed with a gluten-related disorder or just looking for a refresher, you’ll find what you need in this guide.
Here’s a sneak peek of what’s inside:
Did you know some people may qualify to receive a tax deduction because of a medical need for gluten-free foods? There’s a lot to know when it comes to receiving these tax benefits, so NFCA broke down the rules for you in our Gluten-Free Tax Deduction Guide.
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Celiac disease and gluten sensitivity can impact the relationships we have with our significant others, families and friends. Since February is the unofficial month of love, we’re taking the opportunity to share tips and tricks for navigating everything from the dating scene to what to do when someone asks, “Can’t you just have a little gluten?”
Special thanks to the NFCA team members and gluten-free bloggers who are participating in one or more of the videos in this month-long series!
Thanks to Enjoy Life for supporting this video series!
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A gluten-free diet shouldn’t make any child miss out on the summer camp experience. That’s why NFCA offers GREAT Schools, Colleges and Camps, an online gluten-free foodservice training program.
Through the generous support of Tummydrops by Enteral Health and Nutrition, NFCA is able to offer free GREAT training to a lucky camp looking to safely accommodate their gluten-free campers. Want that camp to be yours? Simply nominate it for the chance to win the gluten-free training! NFCA will select the winner and make the announcement on social media and in an upcoming newsletter.
We’ve all been there – you go to a restaurant that you think can accommodate your gluten-free needs, only to realize hours later that mistakes in handling your food were made.
GREAT Kitchens is here to help!
Learn from NFCA’s Director of GREAT Kitchens, Beckee Moreland, how this gluten-free training program can serve as the answer to your dining out dilemmas. Bob Strate, owner of GREAT Kitchens-accredited TaMolly’s Mexican Restaurants located in Texas, will talk about the difference GREAT Kitchens has made in the chain’s ability to serve safe gluten-free food, while keeping their customers happy and healthy. Get all the GREAT facts so that you can advocate for your dietary needs and help us expand the gluten-free community’s safe dining options!
NFCA’s Beckee Moreland is taking the GREAT Kitchens gluten-free training program on the road! She’ll be hosting a live training session at the Midwest Foodservice Expo, which will be attended by thousands of professionals working in the foodservice sector. Learn more about the Expo here. Be sure to encourage your local restaurants, schools and other establishments to come learn about safe gluten-free training from the experts!
Learn more about GREAT Kitchens and GREAT Schools, Colleges and Camps at www.greatGFkitchens.org.
Traveling is stressful enough as it is, but add in the extra worry of safely eating gluten-free away from home, and travel can seem downright impossible. Here at NFCA, we believe everyone should have the opportunity to live life to the fullest, and that includes travel! Anna Sonnenberg of the blog Gluten-Free Jet Set, and Erin Smith of the blog Gluten-Free Globetrotter, will join us on March 19th to give their best tips for gluten-free travel. Learn what to pack in case you find yourself in a pinch, how to work with hotels and airlines to get gluten-free accommodations, and much more! Whether you’re someone who likes to plan every detail or wing it, this free webinar is for you! Tune in, and see what adventures await.
The National Foundation for Celiac Awareness (NFCA) is excited to announce the Gastroenterology Regulatory Endpoints and the Advancement of Therapeutics (GREAT) 3 Workshop organized by the U.S. Food and Drug Administration (FDA), in co-sponsorship with the American College of Gastroenterology (ACG), the American Gastroenterological Association (AGA), the Crohn’s and Colitis Foundation of America, Inc (CCFA), the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN), the Pediatric IBD Foundation and the North American Society for the Study of Celiac Disease (NASSCD).
The purpose of this workshop is to provide a scientific and technical forum to consider issues related to the selection of endpoints and clinical outcome measures appropriate for drug development in the following disease areas: inflammatory bowel diseases and celiac disease. NFCA's President and CEO Alice Bast is honored to serve on the Workshop's Steering Committee and will represent patients with celiac disease as the Workshop's FDA Patient Representative. Alice will speak about the patient's experiences with and expectations of celiac disease treatment.
Learn more about the Great 3 workshop.
Tell us about your gluten-free product finds on Facebook every Sunday night at 7:45 p.m. EDT! Missed a post? Check out our trending product updates on the Gluten-Free Hot Products blog.
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