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Note from Alice
Cooking with Oonagh
CELIAC AWARENESS MONTH
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Recipe: Carrot Cupcakes
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NFCA Founder & President
Happy Celiac Awareness Month!
National Celiac Awareness Month is an important time to bring attention to celiac disease, especially when so many people need our help. About 83% of individuals living with this autoimmune disease are still undiagnosed. That’s a dramatic improvement from the 97% who were undiagnosed 10 years ago, but we have plenty of ground left to cover. We also know that there are many more people – about 6% of the population – who also need to be gluten-free due to non-celiac gluten sensitivity.
This year, NFCA’s theme for Celiac Awareness Month is “Fuel the Family,” and we are focusing on the role of family testing for celiac disease. Having a family member with celiac disease can greatly increase your risk of developing the condition. That increased risk also means families are a prime place to start driving diagnoses.
We know that many family members are resistant to getting tested for celiac disease. We know they often fail to recognize their own symptoms. We also know that many would be willing to get tested if their family members just asked. We are empowering you to help!
“Fuel the Family” also extends to other activities during Celiac Awareness Month. It’s about “fueling the family” with gluten-free food (at lower prices); with information about gluten-related disorders; and with the strength to speak up at restaurants and schools when gluten-free needs aren’t being met.
Our goal this month is to encourage everyone to talk to their families. It could be asking them to take the Celiac Disease Symptoms Checklist, teaching them how to properly read labels, or inviting them to support the cause.
The National Foundation for Celiac Awareness (NFCA) is so excited to bring you a new resource to help you talk to your family about celiac disease testing. We hope you will find it helpful in learning about celiac disease, non-celiac gluten sensitivity and the gluten- free diet, and empower you to share this information with family, friends and the public. Download it for free here.
We thank you for joining us in this nationwide effort to restore health and reclaim lives!
To Your GREAT Health,
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Happy Celiac Awareness Month! In honor of the month, I’m sharing with you one of my favorite recipes for a celebration. Enjoy!
GLUTEN-FREE TRÈS LECHE CAKE
A special gluten-free dessert for Cinco de Mayo, as well as any party, especially garnished with lots of lovely summer fruits, strawberries, raspberries, nectarines or mangoes.
About Chef Oonagh Williams
British-born award-winning chef Oonagh Williams has a culinary arts degree and was trained in London and Switzerland. Based in New Hampshire, Chef Oonagh began adapting meals to gluten-free versions after her son was diagnosed with gluten and lactose intolerance two years ago. To learn more, visit Chef Oonagh’s website at www.RoyalTemptations.com or ‘Like’ her at Gluten Free Cooking with Oonagh on Facebook.
By Silvana Nardone
Get your gluten-free cooking and baking questions answered by the expert! Have a question for Silvana? E-mail Alicia at [email protected] and your question could be answered in a future NFCA newsletter.
What are your top 5 meal suggestions for families that are bored with their same old dinner routines?
About Silvana Nardone
Silvana Nardone is the editor-in-chief of the all-digital, gluten-free magazine, Easy Eats. Silvana is also the author of Cooking for Isaiah: Gluten-Free & Dairy-Free Recipes for Easy, Delicious Meals and publisher of Silvana's Kitchen, a blog that takes the guesswork out of how to feed a family with food allergies. Previously, she was the owner of a Brooklyn-based bakery, Fanciulla Specialty Foods, and the founding editor-in-chief of Every Day with Rachael Ray.
This Celiac Awareness Month, we are excited to unveil our first-ever downloadable toolkit, designed to help you make the most of this month-long celebration. Whether you’re newly diagnosed or a gluten-free pro, you’ll find information that’s right for you in the toolkit. We’ve got you covered!
The number of gluten-free bloggers is increasing daily and we here at the National Foundation for Celiac Awareness (NFCA) love to follow their stories. For Celiac Awareness Month, we asked a few of our blogger friends to share their stories about celiac disease in the family. We hope you will find comfort and inspiration in these personal stories!
Bookmark the Gluten-Free Blogger page and check back often for new stories: www.beyondceliac.org/awarenessmonth/bloggers/
A big thank you to the bloggers and NFCA staff members who are sharing their stories this month!
It can be hard to find the right words when talking to your family about celiac disease. So, have someone else do the talking! Two members of NFCA's Scientific/Medical Advisory Council, Ken Kilgore and Dr. Ritu Verma, shared their personal stories and advice for families in two new videos that NFCA will premiere during Celiac Awareness Month. You can watch Ken's video now, then stay tuned for Dr. Verma's video coming later this month!
NFCA thanks these sponsors for supporting Celiac Awareness Month
The staff here at the National Foundation for Celiac Awareness (NFCA) will be sporting our green gear throughout May in honor of Celiac Awareness Month. We want to share the fun, but we need your help!
We’re asking everyone to wear green any day in May and post a picture of you and your crew (family, friends, neighbors, whoever!) to NFCA’s Facebook page. We’ll gather all the photos and add them to a special album: Celiac Awareness Month 2013: Family Photos. Be sure to share the album with your Facebook friends to help celiac awareness go viral!
We share our gluten-free finds every week on the Gluten-Free Hot Products blog, but throughout May, we’re highlighting a gluten-free product every day. That’s right! We’ll feature a new product right here on beyondceliac.org so you can fuel your family in a more literal sense – with tasty gluten-free alternatives. We’ll tell you where the flavor inspirations came from; give you a snapshot of the nutrition facts, plus suggestions for how to eat them.
Follow the action on Facebook, Pinterest and our Product of the Day page daily!
You read that right – you can donate to the National Foundation for Celiac Awareness without spending a dime! Two generous NFCA sponsors are hosting Celiac Awareness Month events that will raise funds to support our free educational materials and services.
So Delicious Dairy-Free Facebook “Like” Campaign
"Like" So Delicious Dairy-Free's Facebook page and they’ll donate $1 to NFCA (up to $5,000). Just click here to visit their Facebook page to head to their Facebook page, click "Like" and feel good knowing you’ve contributed to the cause!
EatSmart Naturals Social Media “Tip” Fundraiser & Giveaway
EatSmart Naturals has a way you can donate without spending money, plus get a chance at something in return! All you have to do is share a tip for living gluten-free on their Facebook page under the Giving is Natural Tab and you’ll be entered to win an EatSmart Naturals prize package. Every tip you share earns $1 for NFCA (up to $2,500)!
Thank you, So Delicious Dairy-Free and EatSmart Naturals, for your generosity!
Carrot Cupcakes with Dairy-Free Pineapple Cream Cheese Frosting
By Alisa Fleming
A touch of pineapple in both the cupcakes and frosting puts a spring in the step of this recipe. For the frosting, several brands of dairy-free cream cheese alternative are now available, but they tend to be slightly softer and less pungent than dairy cream cheese. To compensate and punch up the flavor, this recipe uses a higher ratio of cream cheese alternative and a squeeze of citrus.
Gluten-free items are popping up on menus all across the country. In fact, 200 million restaurant visits in 2012 included gluten-free requests. With such an increase in popularity, the need to educate people on safe gluten-free cooking practices is greater than ever.
Enter Beckee Moreland, Director of Gluten-Free Industry initiatives at the National Foundation for Celiac Awareness (NFCA) with Food Network’s “Next Iron Chef” finalist Jehangir Mehta. The duo will tackle common myths about gluten-free food at the 2013 National Restaurant Association (NRA) Show. The NRA Show draws over 58,000 industry professionals from across the globe, so they’ll be talking to a large and vested audience about the importance of gluten-free food safety.
Beckee’s goal is to help chefs understand that there’s more to gluten-free cooking than just using gluten-free ingredients. “In the rush to introduce gluten-free options, many restaurants have neglected the due diligence and staff training that are so essential in protecting the health of consumers with celiac disease and gluten sensitivity. Our community is getting sick, and it all could be avoided with a few changes in protocols,” she said.
Together, Chef Mehta and Beckee hope to bring more awareness and understanding of the gluten-free diet and the importance of doing it right. They’ll be speaking at the NRA show on May 21, so stay tuned for a post-session update!
With more restaurants offering gluten-free options, it’s important to make sure they understand what it means to safely serve people with celiac disease and non-celiac gluten sensitivity (NCGS). NFCA was excited to contribute to this infographic, which is a snapshot of essential facts, from gluten-containing ingredients to the serious risk of cross-contamination.
View this infographic on PizzaMarketPlace.com.
Join NFCA (@CeliacAwareness) and Kathleen Reale of Be Free for Me (@kreale) for a 1-hour chat about gluten-free shopping tips and meal ideas that can save your wallet. It's all a warm up for NFCA's free webinar on the following night! Sponsored by The Hain Celestial Group, Inc.
Get the details on this Twitter chat.
You asked and we’re answering! One of the most popular requests for an NFCA Webinar is how to maintain a healthy gluten-free diet while not breaking the bank. Join NFCA during Celiac Awareness Month as we share money-saving grocery tips and provide a list of go-to healthy gluten-free recipes with the help of Kathleen Reale of Be Free for Me.
Sponsored by Cabot Creamery and Frito-Lay, this webinar is free of charge.
Join the National Foundation for Celiac Awareness (NFCA) for the 6th Annual Celiac Awareness Night with the Philadelphia Phillies! Watch as the Phillies take on the Los Angeles Dodgers while enjoying even more gluten-free food and drink options at the ballpark. Plus, enter in a free raffle to win Phillies gear, tickets to a 2013 regular season game and more!
Order through this group sale now before they’re released to the public on July 2!
Order your tickets here.
With their only treatment found in the grocery aisle and not behind the pharmacist's counter, celiac disease patients have relied upon delicious gluten-free recipes and cooking tips to navigate their medically necessary diet. As research continues to prove the need for a non-dietary therapy and scientists move closer to developing a pharmaceutical treatment, it is important for patients to learn more about the field of immunology, a critical piece to the celiac disease puzzle but one that is often left out of the patient education, as well as understand the basics about the drug development and approval process.
Miss New Jersey International Jenna Drew is hosting an online silent auction in honor of Celiac Awareness Month. All proceeds raised from the auction will go directly to support the free programs and services offered by the National Foundation for Celiac Awareness.
Visit Jenna’s blog for all the auction details: GlutenFreeJenna.com
Alicia Carango, NFCA Communications Assistant
VIDEO: Gluten-Free Needs Beyond Food
CBS news affiliates in New York and Miami featured a story on the need for gluten-free products other than food. NFCA Founder and President, Alice Bast and NFCA Scientific/Medical Advisory Council member Dr. Joseph Murray were interviewed for the piece, which addressed the growing interest in gluten-free cosmetics and toys – including cases in which they may or may not be necessary.
Read more from CBS Miami.
Survey Participants Needed: Celiac Disease and Family Testing
In 2012, the National Foundation for Celiac Awareness (NFCA) conducted research in conjunction with Emerson College and The Celiac Center at Beth Israel Deaconess Medical Center to learn more about the attitudes and beliefs about testing for celiac disease among family members of persons diagnosed with this autoimmune condition.
We are pleased to announce that NFCA is continuing this research in collaboration with The Jefferson Celiac Center of Thomas Jefferson University Hospitals, Philadelphia. Together, NFCA and The Jefferson Celiac Center now ask you to complete a survey that aims to determine what recommendations patients with celiac disease receive from their physicians regarding family member testing.
If you have already completed the survey, thank you for participating! Each participant should only complete the survey once.
The survey period has closed. Thank you to all who participated!
Stay tuned for updates from NFCA and the Jefferson Celiac Center on the results of this survey.
Editorial: Celiac Disease Expert Reviews History of Research
Renowned researcher Dr. Alessio Fasano of the Center for Celiac Research at MassGeneral Hospital for Children in Boston shared an editorial piece focused on the spectrum of gluten-related disorders. From his start in treating celiac disease in the early 1990s until now, Dr. Fasano covers what we’ve learned about celiac disease and what we still need to find out.
Expanding the Spectrum of Gluten-Related Disorders
You’re Not Feeling Better on the Gluten-Free Diet. Now What?
Some people feel better right away on the gluten-free diet, while others need more time for symptom relief. It’s always best to talk to your doctor about lingering symptoms, but this blog post has helpful information and tips for when the gluten-free diet just doesn’t seem to be working.
Read more from EmpowHER.
Graw Foods Grawlmonds
Grawlmonds are what you get when you cross “Graw Foods” with “Almonds.” These raw, sprouted almonds are as unique as their name. The package boasts a “big bold flavor” and they aren’t kidding! I had the Zesty Onion flavor and it certainly was bold. (Have some gum handy!). I liked this better as an addition to a salad rather than just eating them by the handful. Big on flavor, these almonds are a nice change of pace from your regular ol’ almonds. Check them out on the Graw Foods website.
Raw Food for Dummies
New to the “dummies” collection is Raw Food for Dummies, by vegan culinary and holistic nutrition expert Cherie Soria and health educator and speaker Dan Ladermann. Those of you who are curious about raw foods will want to check this one out. It explains how to get the appropriate nutrients on a raw food diet, and how to add more into your diet if you don’t want to go completely raw. This not a “gluten-free only “cookbook, so double check the ingredients and swap in gluten-free alternatives when necessary! See a snapshot of the book on Dummies.com.
Better 4 U Foods Mediterranean Pizza
I’ve tried the Better 4 U Gluten-Free Roasted Vegetable Pizza before, but this time, we tried out the Mediterranean Pizza. NFCA staff member Jennifer North made this in our office toaster oven (dedicated gluten-free!) and had pretty good results. She was a fan of the taste and texture and I think Better 4 U Foods offers one of the better crusts on the gluten-free market. You can find their other gluten-free pizza varieties at Better4UFoods.com. (They sell gluten-containing pizza, too, so make sure you’re in the right section!).
Dei Fratelli Truly Tomato Juice
If you like tomatoes or tomato juice, you’re in for a treat with Dei Fratelli’s Truly Tomato Juice. It contains just two ingredients - tomatoes and sea salt - so this is a juice that is not from concentrate. It’s only 40 calories per serving, so you can feel good about drinking this in place of other juices that tend to be much higher in calories. Check them out at DeiFratelli.com.
Absolutely Gluten-Free Crackers
Next time you're looking for a gluten-free cracker to hold up your favorite dip, topping or cheese, give Absolutely Gluten-Free Crackers a try. They have tons of varieties, so you're sure to find delicious flavor pairings for any of their crackers. Top the Cracked Pepper crackers with sour cream, corn and a jalapeno pepper in the middle or add thin slices of your favorite gluten-free lunch meats or cheeses to the Flatbread crackers to make mini sandwiches. See all the cracker varieties at AbsolutelyGF.com.
We’re sharing a gluten-free product each day throughout Celiac Awareness Month! Bookmark this page and check back daily:
Want even more Hot Products? Visit www.GlutenFreeHotProducts.com for reviews of the latest gluten-free products.
This newsletter is proudly sponsored by: