Beyond Celiac, the leading catalyst for a celiac disease cure in the United States, announced today it is launching a new Virtual Town Hall series of interviews with top scientists, doctors and other professionals in the celiac disease field. By hosting these conversations via a live Zoom event open to the public, Beyond Celiac aims to delve deeper into the research and medical topics its community wants to learn more about and connect them with the people making advancements happen.
“Our celiac community drives everything we do here at Beyond Celiac to accelerate research towards a treatment and cure for celiac disease,” said Alice Bast, CEO of Beyond Celiac. “When we create dialogue between celiac disease patients and the researchers and medical professionals in the field, we are connecting science with the realities of the patient experience, powering scientific progress and keeping our community informed.”
The first Town Hall will be live on Wednesday, March 24 at noon EST. The conversation will be recorded and available to view afterward at beyondceliac.org. For more information and the Zoom link, visit www.beyondceliac.org/town-halls.
Beyond Celiac director of scientific affairs Amy Ratner will lead the discussion with Lisa Fahey, MD, clinical director of the Celiac Center at The Children’s Hospital of Philadelphia (CHOP) and Betsy Turner, PhD, pediatric psychologist and psychosocial manager in the CHOP Division of Gastroenterology, Hepatology and Nutrition.
The group will explore several key topics of interest for parents of children with celiac disease, including:
Future Town Hall dates will include conversations with leading organizations such as the National Minority Quality Forum (NMQF), a research and educational organization dedicated to ensuring that high-risk racial and ethnic populations and communities receive optimal health care. Beyond Celiac and NMQF announced they will be working together over the next several years to examine and address health inequities in the diagnosis and treatment of celiac disease.
Celiac disease is a serious genetic autoimmune disorder that affects an estimated 1 in 133 Americans, more than half of whom are still undiagnosed. The disease causes damage to the small intestine, resulting in debilitating symptoms, and if left untreated, can lead to serious long-term health problems including infertility and some types of cancer.