National Public Radio (NPR) discusses the dangers of undiagnosed celiac disease on today’s Morning Edition‘Your Health’ segment with health reporter Allison Aubrey. ‘Going Gluten-Free at Age 13’ features dedicated NFCA volunteers Jay, Robin, Jacob and Michael Rosenblum. The Rosenblums share their personal experience with celiac disease and invite Allison into their home for a gluten-free dinner!
NFCA Scientific and Medical Advisory Board member Dr. Dan Leffler of Beth Israel Deaconess Medical Center is also quoted.
Listen to the entire segment, read the accompanying ‘Going Gluten-Free at Age 13’ article, and get the Rosenblum family’s gluten-free dinner recipes below!
Bloating and abdominal pain are common symptoms of celiac disease. And, while it's normal to pass gas, experts say that people with celiac disease often have a lot of smelly gas. Increasingly, experts have identified a broad range of additional symptoms that include hair loss, fatigue, canker sores, itchy skin rashes, and tingling in the hands and feet. See the National Foundation for Celiac Awareness for a complete checklist. A blood test is used to diagnose the condition.
Expanding Options In Gluten-Free Cooking
Since Jacob was diagnosed in the fall of 2008, the Rosenblums have restocked their pantry. Jules Gluten-Free Flour has replaced Bisquick, and they use it to make the traditional Toll House chocolate chip cookies.
The Rosenblums have tried lots of new recipes. Recently, they've been turned onto red quinoa — a nutritious, protein-rich grain that is gluten-free. Jacob's father, Jay, tried a new black bean, cilantro and quinoa recipe from Bon Appetit recently. Jacob says the grain is similar to rice, but it has a funny texture and flavor.
"It's more tough, and it has a more of a bitter flavor," he says. "But it's still good." He says he eats a lot of corn- and potato-based foods.
"Utz chips are gluten-free," he says, as he points to the labeling on the bag. For lunch, his mom, Robin, reheats leftovers and packs them in a thermos. If they're in a rush, Jacob says, pocket sandwiches by the organic food company Amy's are easy to take and heat up.
Diagnosis Is The First Step To A Solution
Jacob used to have excruciating stomach pains. During seventh grade, he remembers dashing off to the bathroom during tests. "Then I had less time to take the test." And after sports practices, he'd come home doubled over in pain.
At the time, his family had no idea the pain was triggered by eating gluten — a protein found in wheat, barley and rye grains.
"It got to the point where I had to miss sports practices and games because I was so sick," Jacob recalls. "It was really painful."
His mom says that, in hindsight, she recalls Jacob having bouts of stomach problems. At one point, she'd suspected he was lactose intolerant, but the symptoms always seemed to pass. When she took him to the pediatrician, she was nervous.
"I thought there was something seriously wrong," she says. She had read about celiac disease on the Internet after searching around for clues. "It was in the back of my mind, so I mentioned it to the doctor."
At the time Jacob was being tested, she didn't know her husband carried the genes for the disease. When Jacob's blood tests came back positive for celiac, she was surprised.
The day after Jacob's diagnosis, she got a little teary in a grocery-story aisle after realizing how many foods contain gluten. It's not just breads and baked goods: The list includes soy sauces, salad dressings and many other processed foods. It stressed her out, but she says she realized pretty quickly how lucky they were.
"I was elated," says Robin. "There's no medicine, no surgery." She said it was such a relief to know he could get better by changing his diet.
Diagnosis And Diet Changes Lead To A Quick Recovery
Jacob's turnaround was quick. Once he gave up his peanut butter and jellies on whole wheat, along with his breakfast cereals and pasta, he says he got almost immediate relief.
"Within like one or two weeks of going gluten-free, I didn't have any symptoms I had before," Jacob says.
Experts say this quick recovery is typical.
"In about 90 percent of patients, they get almost complete relief of whatever symptom they came in with — anything from hair loss to fatigue to diarrhea," says Dr. Daniel Leffler, who directs celiac research at the Beth Israel Deaconess Medical Center.
"With diet alone, the symptoms can really be almost completely ameliorated."
The symptoms of celiac disease overlap with many other conditions, and the symptoms come and go. In many instances, stress brings on an episode of intense symptoms. These factors help explain why people with celiac disease endure an average of 10 years of symptoms before getting the right diagnosis, according to the National Foundation for Celiac Awareness.
The Consequences Of Not Treating Celiac Disease
People with celiac disease have a hard time absorbing nutrients, and they are often fatigued due to anemia. The disease damages part of the small intestine called villi, which are absorptive, finger-shaped projections that line the intestine. Damage to the villi can put untreated celiac sufferers at higher risk of osteoporosis, diabetes and the onset of other autoimmune diseases, according to the celiac foundation. There is also evidence that untreated celiac disease may increase the risk of some cancers.
Chicken Breasts with Pistachio-Cilantro Pesto
NPR.org, June 12, 2009 · This recipe is reprinted with permission from Bon Appetit.
An unusual pesto made from pistachios and cilantro gives the chicken a Middle Eastern flavor.
No substitutions here: all these ingredients are naturally gluten-free. Jay Rosenblum says it looks more complicated than it really is. The key: a food processor for the pesto.
Total cooking time is about 50 minutes, with 25 minutes of prep time. Makes 4 servings.
1 cup unsalted raw pistachios
2 cups (packed) fresh cilantro leaves
4 teaspoons fresh lemon juice, divided
1 garlic clove, chopped
1 teaspoon ground cardamom
3/4 teaspoon salt
1/2 cup plus 5 tablespoons olive oil, divided
4 large chicken breast halves with skin and ribs attached
Preheat oven to 400 degrees Fahrenheit. Toast pistachios on baking sheet until golden, about 7 minutes. Transfer to processor. Maintain oven temperature. Add cilantro leaves, 1 tablespoon lemon juice, and next 3 ingredients to processor. Using on/off turns, process until coarse paste forms. With machine running, gradually add 1/2 cup olive oil. Season pesto with pepper.
Using fingers, gently loosen skin from 1 side of each chicken breast, forming pocket. Spread 1 tablespoon pesto evenly under skin of each. Sprinkle chicken generously with salt and pepper.
Heat 1 tablespoon olive oil in heavy large ovenproof skillet over medium-high heat. Add chicken, skin side down. Cool until skin is dark golden, about 5 minutes. Turn chicken over and transfer skillet to oven. Roast chicken until cooked through, about 25 minutes.
Place 1/2 cup remaining pesto into small bowl. Whisk in remaining 1/4 cup olive oil and remaining 1 teaspoon lemon juice. Drizzle pesto sauce over chicken breasts and serve.
Quinoa With Black Beans And Cilantro
NPR.org, June 12, 2009 · This recipe is reprinted with permission from Bon Appetit.
Robin and Jay Rosenblum say this dinner is a little fancy for a Monday night, but it's pretty simple and tasty. Hearty and high in protein, this can serve as the main dish. Quinoa is a great whole grain, gluten-free alternative. Or, you can substitute with rice, which is also gluten-free.
Total time is about 50 minutes with 25 minutes prep time. Makes 4 servings.
1 tablespoon vegetable oil
2 cups chopped white onions
1 cup chopped red bell pepper
1 cup quinoa, rinsed and drained
2 teaspoons chili powder
1/2 teaspoon ground cumin
1/2 teaspoon salt
1 1/2 cups water
1 15-ounce can black beans, rinsed, drained
1/2 cup chopped fresh cilantro, divided
Crumbled Cotija cheese or feta cheese (optional)
Heat oil in heavy medium saucepan over medium-high heat. Add onions and red pepper; sauté until beginning to soften, about 5 minutes. Stir in next 4 ingredients.
Add water; bring to boil. Cover, reduce heat to medium-low, and simmer until quinoa is almost tender, about 14 minutes.
Add beans and 1/4 cup cilantro; cook uncovered until heated through and liquid is fully absorbed, about 3 minutes. Transfer to bowl; sprinkle with 1/4 cup cilantro and cheese, if desired.
A copy the June 15th, 2009 Morning Edition ‘Your Health’ gluten-free segment can also be downloaded from the NPR website.